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Tracking Inherited Cancer Risk: How the NIPR Enables Early Detection and Improved Care
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Understanding rare inherited cancer risks: challenges in clinical management due to limited or inconsistent evidence.
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Closing the gap between gene discovery and patient care: collaborative guideline development with national and international experts.
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The National Inherited Cancer Predisposition Register (NIPR): its purpose, scope, and how it tracks patients at risk.
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Impact on preventative screening and clinical care: linking the register to national datasets to study incidence, survival, and outcomes of early detection or risk-reducing interventions.
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Future directions: expanding research, improving personalised patient management, and supporting trials for high-risk individuals.
