Genetic Alliance UK is an alliance of over 250 organisations, charities and support groups working together to improve the lives of everyone in the UK living with genetic, rare and undiagnosed conditions.
We advocate for improving care, progressing medical research, increasing awareness and improving information and support.
We also run Rare Disease UK and SWAN UK, the only dedicated support network in the UK for families affected by genetic conditions so rare, they often remain undiagnosed.