Social Genomics Stage

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11:30
  1. Community Engagement in Genomics and Health Research. The Successes, the Challenges, Lessons Learnt and Next Steps
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Manpreet Bains
    Manpreet Bains, Associate Professor, Faculty of Medicine & Health Sciences - University of Nottingham
    Speaker image for Rupinder Kaur Bajwa
    Rupinder Kaur Bajwa, Research Fellow - University of Nottingham
12:00
  1. The Chromosomes that NGS Forgot…
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Allison Watson
    Allison Watson, Chief Executive Officer - Ring 20 Research & Support UK CIO
12:30
  1. How We’re Co-Creating The UK’s Largest Health Research Programme
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Fiona Maleady-Crowe
    Fiona Maleady-Crowe, Chief Compliance and Integrity Officer - Our Future Health
13:00
  1. Lunch break
    Social Genomics Stage
    70 mins
14:10
  1. Keep Me Breathing: A Patient and Family Journey in Rare Disease
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for James Oakley
    James Oakley, Chairman - Keep Me Breathing Charity
14:40
  1. The Power of Listening: Patient Involvement Shaping Genomics in Wales
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Alice Frenken
    Alice Frenken,  Project Manager - Genomics Partnership Wales
15:10
  1. Connecting People, Shaping Practice: Developing the UK Genomic Network
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Sarah Cunningham-Burley
    Sarah Cunningham-Burley, Chair of the Nuffield Council on Bioethics and Professor of Medical and Family Sociology  - University of Edinburgh
15:40
  1. Networking break
    Social Genomics Stage
    30 mins
16:10
  1. Beyond Inclusion: Rebuilding Trust and Equity in the Genomic Era
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Veline L’esperance
    Veline L’esperance, Senior Clinical Advisor - NHS Race and Health Observatory 
16:40
  1. Involving Community Organisations in Participant Recruitment For The Improving Black Health Outcomes (IBHO) BioResource
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Anna Njie
    Anna Njie, Director - Go Africa Community Hub
    Speaker image for Ruth Yedu
    Ruth Yedu, Clinical Trials Assistant - NIHR Sheffield BRC BioResource
    Speaker image for Nathalie Kingston
    Nathalie Kingston, Director - NIHR BioResource
17:10
  1. Panel Discussion: Involving Children in Research: How the DNA, Children + Young People’s Health Resource (D-CYPHR) Programme Has Made Research a Family Activity
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for George Hudson
    George Hudson, Clinical Research Practitioner - NIHR Leicester BRC BioResource
    Speaker image for Hannah Stark
    Hannah Stark, Operations Lead - NIHR BioResource
    Speaker image for Keval Sachdev
    Keval Sachdev, Founder - Aikyam UK
11:30
  1. Genetic Research on Individual Differences on Cognitive Abilities
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Robert Plomin
    Robert Plomin, Professor of Behavioural Genetics - King's College London
12:00
  1. Decoding Patient Experiences: Communicating the Human Side of Genomic Medicine
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Susie Weller
    Susie Weller, Research Fellow - Centre for Personalised Medicine
    Speaker image for Kate Lyle
    Kate Lyle, Senior Research Fellow - Centre for Human Genetics
12:30
  1. Panel Discussion: Lived Experience of Medical Nomenclature
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Sarah Wynn
    Sarah Wynn, Chief Executive Officer - Unique 
    Speaker image for Francesca Wicks
    Francesca Wicks, Information Officer - Unique 
    Speaker image for Sasha Henriques
    Sasha Henriques, Principal Genetic Counsellor - Guy's and St Thomas NHS Foundation Trust
    Speaker image for Tootie Bueser
    Tootie Bueser, Chief Nurse - South East Genomic Medicine Service
    Speaker image for Emma Tomlinson
    Emma Tomlinson, Specialist Midwife - Tommy's Rainbow Clinic
13:00
  1. Lunch Break
    Social Genomics Stage
    75 mins
14:15
  1. Addressing Health Disparities: The Impact of Workforce Diversity on The Patient Population
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Vicki Heath
    Vicki Heath, Chief Healthcare Science Officer - Welsh Government
14:45
  1. Panel Discussion: Empowering the Global Genomics Workforce: Building Capacity, Confidence & Community Through GGNET
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Jillian Hastings Ward
    Jillian Hastings Ward, Patient Advocate
15:15
  1. Making Genomics Work: Introducing the Mainstream Genetic Counsellor Toolkit
    Social Genomics Stage
    30 mins
    Speakers
    Speaker image for Roberta Rizzo
    Roberta Rizzo, Consultant Genetic Counsellor - Oxford University Hospitals NHS Foundation Trust
15:45
  1. Networking Break
    Social Genomics Stage
    30 mins
16:15
  1. Panel Discussion: Empowering a Genomics-Ready Workforce
    Social Genomics Stage
    60 mins
    Speakers
    Speaker image for Mark Kristiansen
    Mark Kristiansen, Head of UCL Genomics and Associate Professor (Education) - University College London
    Speaker image for Teodora Popa
    Teodora Popa,  Lecturer - University College London
    Speaker image for Horia Stanescu
    Horia Stanescu, Associate Professor - University College London
    Speaker image for Diego Marín
    Diego Marín, Adjunct Professor - The State University of New Jersey
    Speaker image for Francesca Tonini
    Francesca Tonini, GLH Scientist Educator Lead | East Genomics & Genomics Education Programme Scientific Co-Chair | ACGS Workforce Development Committee Clinical Scientist | HCPC