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Chris Kessler
Patient Voice
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Parent of a child with a rare disease
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Chris Kessler is the father to a 15 month old son, Charlie, who received a diagnosis of Spinal Muscular Atrophy Type 1 in October of 2024. In December of the same year, Charlie received a gene therapy called Zolgensma at Evelina Children's Hospital in London. While still facing many challenges, Charlie continues to progress well, achieve new milestones, and remain his happy self. Chris is passionate to share his family's story in hopes that it can bring about wider awareness of SMA, inspire hope, and drive greater access to advanced therapies.
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Parent of a child with a rare disease
Sessions
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Inside the Patient Experience of Advanced Therapies28-Jan-2026Advanced Therapies Stage