Roundtable Discussion: Data Citizenship - Who Owns Your Genome? 

Thursday 29 January | 11:30 - 13:00 | Genome Dome

Everyone is invited to this interactive discussion to share perspectives and challenge assumptions.

Step into a thought-provoking roundtable exploring one of the biggest questions in modern genomics: Who really owns your genome?

Participants will discuss the complexities of data citizenship, from ownership and access to what makes a project ethically and practically suitable.

Image of dna and a scientist

Roundtable Leaders

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Speaker profile image for Kate Sahan

Kate Sahan

Research Fellow
The Ethox Centre 
Speaker profile image for Kathleen Lidell

Kathleen Lidell

Professor of Intellectual Property and Medical Law
University of Cambridge
Speaker profile image for Natalie Banner

Natalie Banner

Chief Ethics and Engagement Officer
Genomics England
Speaker profile image for Stephan Beck

Stephan Beck

Emeritus Professor of Medical Genomics | Director
 UCL Cancer Institute | Personal Genome Project UK 

Why Attend

Topics for discussion

  • Consent vs. control: What does meaningful consent look like in long-term genomic research, where data reuse is common. 

  • Data access and sharing: Who should have access and under what conditions. 

  • Equity and representation: How do ownership models impact underrepresented populations and global diversity?  

Who should attend

  • Researchers and clinical scientists working with genomic data.
  • Bioethicists, ELSI specialists, and ethics committee members.
  • Policy, regulatory, and data governance professionals.
  • Patient advocates and public engagement specialists.
  • Legal professionals interested in IP, data rights and consent frameworks.
  • Anyone interested in the future of genomic data ownership, access and equity.

 

Roundtable format

  • This roundtable is led by four expert facilitators who will guide an open, interactive discussion rather than a formal presentation.
  • Participants will sit together in a small-group setting, exploring each topic collaboratively, with the experts prompting debate, posing questions, and helping the group unpack real-world scenarios.
  • Expect an inclusive, conversational format where everyone’s voice is encouraged and the session evolves based on the ideas brought to the table.